HLHS (hypoplastic left heart syndrome) is a heart defect that affects 1,000+ newborns each year in the United States, in which the left side of the heart is severely underdeveloped, and the right side of the heart must pump blood to both the lungs and the body. The only treatment for HLHS is aggressive, early intervention. The most common approach involves a three-stage surgical procedure. The operations are performed within the first few years of life and create reliable blood flow in and out of the functional heart chambers.
The vital signs of these infants need to be constantly monitored (heart rate, blood oxygen saturation, food intake, etc.) as any significant change could lead to an emergency situation or worse. There is not enough data for researchers to understand the triggers and causes of this condition or for emergency episodes.